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Our Stories
Here we openly share our stories, struggles, hopes, and needs for the future. The Young Onset Dementia Carers Collective is actively fundraising. If we really want to do right by people with dementia, we have to care for the carers. Help us help ourselves.
Finding Purpose Together at The Re-Creators
With the right space, the right community and the right opportunity, people with young onset dementia can not only flourish, but can make a real difference.
Open Letter from a couple in need echoing the voices of many
November 2025. To the New Zealand Government. I am writing again because I continue to be redirected between offices, and I have now been advised by the Rt Hon Christopher Luxon’s office that my concerns fall under the Health portfolio. I am requesting urgent attention, as my husband and many other New Zealanders living with younger-onset dementia are being devastatingly failed by our current systems.
Embracing Opportunities
The Young Onset Dementia Collective jumped onboard the food truck business for a day, and won over a new fan.
Two Decades of Knowing, Two Decades of Neglect
Analysis - Paul Singh, PhD I often write that the need for age-appropriate support and services for people with Young-onset Dementia (YOD) and their whanau has been ignored by successive governments. It is a theme that runs through almost everything I publish: families living with YOD are left to adapt within systems designed for older people, and their voices are treated as an afterthought. But yesterday, the advocates with lived experience from the Young Onset Dementia Coll
Volunteering at Fair Food, where no one is defined by dementia
Every year as the mid-winter stars appear in the sky, West Auckland food waste charity Fair Food has a Matariki festival to celebrate the stars who make their organisation work.
All sorts of 'Good Sorts'
The Young Onset Dementia Collective’s (YODC) nomination of Fair Food’s lead volunteers Mandy Everill as a ‘Good Sort’ was a no brainer.
Feeling good, doing good - The power of community
Young Onset Dementia Collective working with Fair Food.
Between Night and Day: A Samoan Family’s Journey Through Young Onset Dementia
The signs were subtle at first. Antonia had always been meticulous—clean, organised, house-proud. She would rearrange the sitting room...
Who doesn’t love weddings?
Well not everyone. Certainly after 28 years of being engaged it never occurred to Andy that he and Sandra would finally get married. YOD...
WHERE WORDS FAIL, MUSIC SPEAKS
It's been said that music produces a kind of pleasure which human nature cannot do without. Music can also help people living with...
Christmas Tradition Ends Due To Young Onset Dementia
Christmas Day in 2013, Malcom Main, first brought joy to Auckland’s North Shore Hospital.
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